Problems and Life Effects Experienced by Individuals with Auditory Neuropathy Spectrum Disorder: An Exploratory Study Using the ICF Classification

Abstract

Auditory Neuropathy Spectrum Disorder is a condition with diversities, including an array of audiological and non-audiological manifestations. The overall impact of Auditory neuropathy spectrum disorder (ANSD) can be understood only through systematic profiling of its auditory and non-auditory effects. The conventional audiological test battery assesses only the former and largely ignores the latter's effects. Employing the International Classification for functioning disability and health (ICF), this study aimed to profile the overall impact of ANSD and correlate them with conventional auditory measures. The study sample included 30 adults with Auditory Neuropathy. The data was collected from all the participants using two open-ended questions: a Problem effects Question (PQ) and a life-effects question (LEQ). A content analysis approach was used to link the responses to ICF categories. There were 125 responses related to PQ and 180 for LEQ, with body function and activity limitation being the most affected domains in PQ and LEQ, respectively. The functions most commonly affected under each domain is discussed. No correlations were found between the ICF-based responses and audiological measures such as Pure Tone Audiometry (PTA) and Speech Identification Scores (SIS), signifying the need for profiling the heterogeneity of ANSD using internationally established tools like ICF.